Kolominsky-Rabas P (2021)
Publication Language: English
Publication Type: Book chapter / Article in edited volumes
Publication year: 2021
Publisher: Academic Press
Edited Volumes: Innovation in Clinical Trial Methodologies. Lessons Learned during the Corona Pandemic
City/Town: London / San Diego, CA / Cambridge, MA / Oxford
Pages Range: 77-84
ISBN: 9780128244906
DOI: 10.1016/B978-0-12-824490-6.00010-4
Registries which shall primarily support the enrollment in trials can be of a quite simple design, what should allow a rapid and large-scale setup with limited initial investment. High compliance and retention can get achieved with a “patient-powered” design that also addresses the need for feedback and interaction to/from and in-between the registered individuals. Modern IT technology should be applied to allow links into other similar registries and the integration of further data sources, such as biobanks, patient-reported outcomes, and data from patient’s smartphone.
APA:
Kolominsky-Rabas, P. (2021). Patient-powered registries for population enrichment. In Peter Schüler (Eds.), Innovation in Clinical Trial Methodologies. Lessons Learned during the Corona Pandemic. (pp. 77-84). London / San Diego, CA / Cambridge, MA / Oxford: Academic Press.
MLA:
Kolominsky-Rabas, Peter. "Patient-powered registries for population enrichment." Innovation in Clinical Trial Methodologies. Lessons Learned during the Corona Pandemic. Ed. Peter Schüler, London / San Diego, CA / Cambridge, MA / Oxford: Academic Press, 2021. 77-84.
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