Perceived shared decision making and satisfaction with care among children and adolescents with special healthcare needs and their parents: Cross-sectional evidence from the PART-CHILD Study

Nisius K, Hoffmann D, Görig T, Georg S, Krug K, De Bock F, Eichinger M (2024)

Publication Type: Journal article

Publication year: 2024

Journal

Patient Education and Counseling Elsevier

Book Volume: 123

Article Number: 108175

DOI: 10.1016/j.pec.2024.108175

Abstract

Objectives: To compare shared decision making (SDM) and satisfaction with care (SWC), an indicator of care quality, between children with special healthcare needs (CSHCN) and parents and to assess the association between SDM and SWC in both groups. Methods: We recruited CSHCN ≥ 7 years and parents from 15 outpatient facilities that completed a paper questionnaire assessing SDM (highest vs. lower levels of SDM) and SWC. Differences in SDM and SWC were assessed with McNemar and paired t-tests. We used adjusted linear mixed models to investigate cross-sectional associations between SDM and SWC. Results: Based on data from 275 CSHCN and 858 parents, 39% and 64% of CSHCN and parents reported the highest level of SDM (p < 0.0001). No difference in SWC was observed (p = 0.36). Perceived SDM was associated with SWC in both groups (both p < 0.0001). Conclusion: Associations between SDM and SWC reinforce the role of SDM for care quality. Large proportions of CSHCN and parents reporting suboptimal levels of SDM highlight the need for effective programs to promote SDM in the target population. Practice implications: Until effective programs become available, healthcare professionals can use existing opportunities to involve CSHCN and parents in consultations (e.g., provide sufficient opportunities to ask questions).

Authors with CRIS profile

Tatiana Görig Professur für Epidemiologie und Public Health

Involved external institutions

Universitätsklinikum Mannheim DE Germany (DE) Universitätsklinikum Heidelberg DE Germany (DE) Universitätsmedizin der Johannes Gutenberg-Universität Mainz DE Germany (DE) Universitätsklinikum Düsseldorf DE Germany (DE)

How to cite

APA:

Nisius, K., Hoffmann, D., Görig, T., Georg, S., Krug, K., De Bock, F., & Eichinger, M. (2024). Perceived shared decision making and satisfaction with care among children and adolescents with special healthcare needs and their parents: Cross-sectional evidence from the PART-CHILD Study. Patient Education and Counseling, 123. https://dx.doi.org/10.1016/j.pec.2024.108175

MLA:

Nisius, Katja, et al. "Perceived shared decision making and satisfaction with care among children and adolescents with special healthcare needs and their parents: Cross-sectional evidence from the PART-CHILD Study." Patient Education and Counseling 123 (2024).

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