Towards a National Portal for Medical Research Data (FDPG): Vision, Status, and Lessons Learned

Prokosch HU, Gebhardt M, Gründner J, Kleinert P, Buckow K, Rosenau L, Semler SC (2023)

Publication Type: Book chapter / Article in edited volumes

Publication year: 2023

Publisher: IOS Press

Edited Volumes: Caring is Sharing – Exploiting the Value in Data for Health and Innovation

Series: Studies in Health Technology and Informatics

Book Volume: 302

Pages Range: 307-311

ISBN: 978-1-64368-389-8

DOI: 10.3233/SHTI230124

Abstract

Harmonizing medical data sharing frameworks is challenging. Data collection and formats follow local solutions in individual hospitals; thus, interoperability is not guaranteed. The German Medical Informatics Initiative (MII) aims to provide a Germany-wide, federated, large-scale data sharing network. In the last five years, numerous efforts have been successfully completed to implement the regulatory framework and software components for securely interacting with decentralized and centralized data sharing processes. 31 German university hospitals have today established local data integration centers that are connected to the central German Portal for Medical Research Data (FDPG). Here, we present milestones and associated major achievements of various MII working groups and subprojects which led to the current status. Further, we describe major obstacles and the lessons learned during its routine application in the last six months.

Authors with CRIS profile

Hans-Ulrich Prokosch Lehrstuhl für Medizinische Informatik Julian Gründner Lehrstuhl für Medizinische Informatik

Involved external institutions

TMF – Technologie- und Methodenplattform für die vernetzte medizinische Forschung e.V. DE Germany (DE) Universität zu Lübeck DE Germany (DE)

How to cite

APA:

Prokosch, H.-U., Gebhardt, M., Gründner, J., Kleinert, P., Buckow, K., Rosenau, L., & Semler, S.C. (2023). Towards a National Portal for Medical Research Data (FDPG): Vision, Status, and Lessons Learned. In Maria Hägglund, Madeleine Blusi, Stefano Bonacina, Lina Nilsson, Inge Cort Madsen, Sylvia Pelayo, Anne Moen, Arriel Benis, Lars Lindsköld, Parisis Gallos (Eds.), Caring is Sharing – Exploiting the Value in Data for Health and Innovation. (pp. 307-311). IOS Press.

MLA:

Prokosch, Hans-Ulrich, et al. "Towards a National Portal for Medical Research Data (FDPG): Vision, Status, and Lessons Learned." Caring is Sharing – Exploiting the Value in Data for Health and Innovation. Ed. Maria Hägglund, Madeleine Blusi, Stefano Bonacina, Lina Nilsson, Inge Cort Madsen, Sylvia Pelayo, Anne Moen, Arriel Benis, Lars Lindsköld, Parisis Gallos, IOS Press, 2023. 307-311.

BibTeX: Download