Home Publications Research Grants Inventions & Patents Awards Additional Research Activities Faculties & Institutions Research Areas

Generation of a Core Set of Items to Develop Classification Criteria for Scleroderma Renal Crisis Using Consensus Methodology

Butler EA, Baron M, Fogo AB, Frech T, Ghossein C, Hachulla E, Hoa S, Johnson SR, Khanna D, Mouthon L, Nikpour M, Proudman S, Steen V, Stern E, Varga J, Denton C, Hudson M, Barnado A, Baron M, Bernstein EJ, Boin F, Braun-Moscovici Y, Castelino FV, Catoggio LJ, Matucci-Cerinic M, Chung L, Clements P, Csuka ME, De Langhe E, Denton C, Distler J, Distler O, Farge DC, Fischer A, Fogo AB, Frech T, Gabrielli A, Ghossein C, Hachulla E, Hasegawa M, Hayat S, Herrick A, Hesselstrand R, Hoa S, Hsu V, Hudson M, Hughes M, Hunzelmann N, Hummers L, Iannone F, Ingegnoli F, Jacobsen S, Johnson SR, Kawaguchi Y, Khanna D, Koenig M, Kuwana M, Lenaerts J, Martin T, Mayes MD, Mcmahan Z, Medsger T, Merkel P, Narain S, Nikpour M, Ong V, Pauling JD, Pope J, Proudman S, De La Puente C, Rischmueller M, Sofia Rodriguez-Reyna T, Sahhar J, Saketkoo LA, Senecal JL, Shah A, Shah AA, Alberto Sifuentes-Giraldo W, Silver R, Steen V, Stern E, Stevens W, Sutton E, Thakkar V, Valentini G, De Vries-Bouwstra J, Vonk M, Walker UA (2019)

---

Publication Type: Journal article

Publication year: 2019

Journal

Book Volume: 71

Pages Range: 964-971

Journal Issue: 6

DOI: 10.1002/art.40809

Abstract

ObjectiveTo generate a core set of items to develop classification criteria for scleroderma renal crisis (SRC) using consensus methodology. MethodsAn international, multidisciplinary panel of experts was invited to participate in a 3-round Delphi exercise developed using a survey based on items identified by a scoping review. In round 1, participants were asked to identify omissions and clarify ambiguities regarding the items in the survey. In round 2, participants were asked to rate the validity and feasibility of the items using Likert-type scales ranging from 1 to 9 (where 1 = very invalid/unfeasible, 5 = uncertain, and 9 = very valid/feasible). In round 3, participants reviewed the results and comments from round 2 and were asked to provide final ratings. Items rated as highly valid and feasible (median scores 7 for each) in round 3 were selected as the provisional core set of items. A consensus meeting using a nominal group technique was conducted to further reduce the core set of items. ResultsNinety-nine experts from 16 countries participated in the Delphi exercise. Of the 31 items in the survey, consensus was achieved on 13, in the categories hypertension, renal insufficiency, proteinuria, and hemolysis. Eleven experts took part in the nominal group technique discussion, where consensus was achieved in 5 domains: blood pressure, acute kidney injury, microangiopathic hemolytic anemia, target organ dysfunction, and renal histopathology. ConclusionA core set of items that characterize SRC was identified using consensus methodology. This core set will be used in future data-driven phases of this project to develop classification criteria for SRC.

Authors with CRIS profile

Involved external institutions

How to cite

APA:

Butler, E.-A., Baron, M., Fogo, A.B., Frech, T., Ghossein, C., Hachulla, E.,... Walker, U.A. (2019). Generation of a Core Set of Items to Develop Classification Criteria for Scleroderma Renal Crisis Using Consensus Methodology. Arthritis and Rheumatology, 71(6), 964-971. https://doi.org/10.1002/art.40809

MLA:

Butler, Emily-Ann, et al. "Generation of a Core Set of Items to Develop Classification Criteria for Scleroderma Renal Crisis Using Consensus Methodology." Arthritis and Rheumatology 71.6 (2019): 964-971.

BibTeX: Download