Concept to gain trust for a German personal health record system using public cloud and FHIR

Ploner N, Neurath M, Schoenthaler M, Zielke A, Prokosch HU (2019)

Publication Type: Journal article

Publication year: 2019

Journal

Journal of Biomedical Informatics Elsevier

Book Volume: 95

Article Number: 103212

DOI: 10.1016/j.jbi.2019.103212

Abstract

Objective: Although a national Personal Health Record (PHR) infrastructure was supposed to have been introduced in Germany by law in 2006 and different providers are entering the market, no system has yet been widely adopted in Germany. There is also little information available on how current technical advancements affect German patients' and physicians' trust in PHR systems. Methods: Supporting scenarios obtained from clinicians, this study proposes a concept for a German PHR system using a public cloud infrastructure, smartphone access and focusing on trust, privacy, and interoperability. In advance to an eventual implementation, a multi-center questionnaire study has been conducted to predict patients' and physicians' intention to use that system and evaluate their trust in different providers of such a system. Results: Our results show that both patients and physicians are highly likely to use the PHR based on the present concept. Trust in healthcare providers exceeds trust in other institutions like private companies, health insurance companies, or even governmental institutions when offering such a PHR system. Conclusions: We recommend the implementation of this PHR system. To maximize patients' and physicians' trust in the system, it should be offered to patients by their healthcare provider. Further evaluation regarding its actual adoption and expected improvement in patient outcome based on the scenarios is advisable.

Authors with CRIS profile

Markus Neurath Lehrstuhl für Innere Medizin I Hans-Ulrich Prokosch Lehrstuhl für Medizinische Informatik

Involved external institutions

Diakonie-Klinikum Stuttgart Diakonissenkrankenhaus und Paulinenhilfe DE Germany (DE) Albert-Ludwigs-Universität Freiburg DE Germany (DE)

How to cite

APA:

Ploner, N., Neurath, M., Schoenthaler, M., Zielke, A., & Prokosch, H.-U. (2019). Concept to gain trust for a German personal health record system using public cloud and FHIR. Journal of Biomedical Informatics, 95. https://doi.org/10.1016/j.jbi.2019.103212

MLA:

Ploner, Nico, et al. "Concept to gain trust for a German personal health record system using public cloud and FHIR." Journal of Biomedical Informatics 95 (2019).

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