Extending the Minimum Information About BIobank Data Sharing Terminology to Describe Samples, Sample Donors, and Events
Eklund N, Andrianarisoa NH, Van Enckevort E, Anton G, Debucquoy A, Mueller H, Zaharenko L, Engels C, Ebert L, Neumann M, Geeraert J, T'Joen V, Demski H, Caboux E, Proynova R, Parodi B, Mate S, Van Iperen E, Merino-Martinez R, Quinlan PR, Holub P, Silander K (2020)
Publication Type: Journal article
Publication year: 2020
Journal
Abstract
Introduction: The Minimum Information About BIobank data Sharing (MIABIS) was initiated in 2012. MIABIS aims to create a common biobank terminology to facilitate data sharing in biobanks and sample collections. The MIABIS Core terminology consists of three components describing biobanks, sample collections, and studies, in which information on samples and sample donors is provided at aggregated form. However, there is also a need to describe samples and sample donors at an individual level to allow more elaborate queries on available biobank samples and data. Therefore the MIABIS terminology has now been extended with components describing samples and sample donors at an individual level.
Authors with CRIS profile
Additional Organisation(s)
Involved external institutions
International Agency for Research on Cancer (IARC)
France (FR)
National Institute for Health and Welfare (THL)
Finland (FI)
Universiteit Gent (UGent) / Ghent University
Belgium (BE)
Latvian Biomedical Research and Study centre (BMC) / Latvijas Biomedicīnas pētījumu un studiju centrs
Latvia (LV)
Helmholtz Zentrum München - Deutsches Forschungszentrum für Gesundheit und Umwelt (HMGU) / Helmholtz Munich
Germany (DE)
Amsterdam University Medical Centers (Amsterdam UMC) / Amsterdam Universitair Medische Centra
Netherlands (NL)
Belgian Cancer Registry (BCR) / Stichting Kankerregister
Belgium (BE)
University of Groningen / Rijksuniversiteit Groningen
Netherlands (NL)
Universitätsklinikum Würzburg
Germany (DE)
Karolinska Institute
Sweden (SE)
Ospedale San Martino (IRCCS AOU)
Italy (IT)
University of Nottingham
United Kingdom (GB)
Deutsches Krebsforschungszentrum (DKFZ)
Germany (DE)
Charité - Universitätsmedizin Berlin
Germany (DE)
Biobanking and BioMolecular resources Research Infrastructure - European Research Infrastructure Consortium BBMRI-ERIC
Austria (AT)
France (FR)
National Institute for Health and Welfare (THL)
Finland (FI)
Universiteit Gent (UGent) / Ghent University
Belgium (BE)
Latvian Biomedical Research and Study centre (BMC) / Latvijas Biomedicīnas pētījumu un studiju centrs
Latvia (LV)
Helmholtz Zentrum München - Deutsches Forschungszentrum für Gesundheit und Umwelt (HMGU) / Helmholtz Munich
Germany (DE)
Amsterdam University Medical Centers (Amsterdam UMC) / Amsterdam Universitair Medische Centra
Netherlands (NL)
Belgian Cancer Registry (BCR) / Stichting Kankerregister
Belgium (BE)
University of Groningen / Rijksuniversiteit Groningen
Netherlands (NL)
Universitätsklinikum Würzburg
Germany (DE)
Karolinska Institute
Sweden (SE)
Ospedale San Martino (IRCCS AOU)
Italy (IT)
University of Nottingham
United Kingdom (GB)
Deutsches Krebsforschungszentrum (DKFZ)
Germany (DE)
Charité - Universitätsmedizin Berlin
Germany (DE)
Biobanking and BioMolecular resources Research Infrastructure - European Research Infrastructure Consortium BBMRI-ERIC
Austria (AT)
How to cite
APA:
Eklund, N., Andrianarisoa, N.H., Van Enckevort, E., Anton, G., Debucquoy, A., Mueller, H.,... Silander, K. (2020). Extending the Minimum Information About BIobank Data Sharing Terminology to Describe Samples, Sample Donors, and Events. Biopreservation and biobanking. https://dx.doi.org/10.1089/bio.2019.0129
MLA:
Eklund, Niina, et al. "Extending the Minimum Information About BIobank Data Sharing Terminology to Describe Samples, Sample Donors, and Events." Biopreservation and biobanking (2020).
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