NAM—help or burden? Intercultural evaluation of parental stress caused by nasoalveolar molding: a retrospective multi-center study

Roth M, Lonic D, Grill FD, Ritschl LM, Loeffelbein DJ, Wolff KD, Niu LS, Pai BCJ, Prantl L, Kehrer A, Heidekrüger PI, Rau A, Lo LJ (2021)

Publication Type: Journal article

Publication year: 2021

Journal

Clinical Oral Investigations Springer Verlag (Germany)

DOI: 10.1007/s00784-021-03850-7

Abstract

Objectives: Nasoalveolar molding (NAM) was developed to facilitate easier treatment and better outcomes for cleft lip and palate (CLP) patients. The aim of this study was to investigate the parental burden and possible intercultural differences of this treatment modality, which is often argued to burden parents to an extraordinary amount. Materials and methods: Standardized questionnaires (available in English, Mandarin, and German) with 15 non-specific and 14 NAM-specific items to be retrospectively answered by Likert scales by parents of unilateral CLP patients with completed NAM treatment. Results: The parents of 117 patients from two treatment centers in Taiwan and Germany were included. A very high level of overall satisfaction was found in both countries with significant intercultural differences in prenatal parent information, feeding problems, dealing with 3rd party’s perception, and experienced personal effort. Conclusion: NAM is an effective treatment tool for children’s CLP deformities and their caregivers in overcoming the feeling of helplessness. Intercultural differences may be due to infrastructural reasons, cultural attitudes and habits, or different public medical education. Clinical relevance: In addition to facilitating easier surgical treatment, NAM can be seen as a powerful coping strategy for parents dealing with a CLP deformity of their child and does not seem to burden them extraordinarily.

Authors with CRIS profile

Andrea Rau Department of Oral and Cranio-Maxillofacial Surgery

Involved external institutions

Klinikum rechts der Isar DE Germany (DE) Universitätsklinikum Regensburg DE Germany (DE) Chang Gung University (CGU) / 長庚大學 TW Taiwan (TW) Chang Gung Memorial Hospital TW Taiwan (TW)

How to cite

APA:

Roth, M., Lonic, D., Grill, F.D., Ritschl, L.M., Loeffelbein, D.J., Wolff, K.D.,... Lo, L.J. (2021). NAM—help or burden? Intercultural evaluation of parental stress caused by nasoalveolar molding: a retrospective multi-center study. Clinical Oral Investigations. https://doi.org/10.1007/s00784-021-03850-7

MLA:

Roth, Maximilian, et al. "NAM—help or burden? Intercultural evaluation of parental stress caused by nasoalveolar molding: a retrospective multi-center study." Clinical Oral Investigations (2021).

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