Schmidhuber M, Häupler S, Marinova-Schmidt V, Frewer A, Kolominsky-Rabas P (2017)
Publication Type: Journal article
Publication year: 2017
Book Volume: 7
Pages Range: 328-338
Journal Issue: 3
DOI: 10.1159/000479426
Background: Advance directives could be an important instrument to support a person's will once he/she is not able to consent anymore - if composed competently. A survey was conducted to identify the level of knowledge concerning possibilities and limits of advance directives. Methods: The study was conducted as part of the Bavarian Dementia Survey (BayDem). Data were collected from January 2014 to December 2015 by structured face-to-face interviews. Study participants were persons with dementia and their informal caregivers (n = 74). Results: In total, 66% reported having written an advance directive. Concerning the participants' knowledge about possibilities and limitations of advance directives, a lack of knowledge was noted about the possibility to revoke an advance directive. Furthermore, 70% of informal caregivers and 56% of persons with dementia were not aware of the possibility to include dementia-specific terms in the advance directive. Conclusion: It is necessary to optimize structures for public information and education concerning the topic of advance directives for persons with dementia.
APA:
Schmidhuber, M., Häupler, S., Marinova-Schmidt, V., Frewer, A., & Kolominsky-Rabas, P. (2017). Advance Directives as Support of Autonomy for Persons with Dementia? A Pilot Study among Persons with Dementia and Their Informal Caregivers. Dementia and Geriatric Cognitive Disorders Extra, 7(3), 328-338. https://dx.doi.org/10.1159/000479426
MLA:
Schmidhuber, Martina, et al. "Advance Directives as Support of Autonomy for Persons with Dementia? A Pilot Study among Persons with Dementia and Their Informal Caregivers." Dementia and Geriatric Cognitive Disorders Extra 7.3 (2017): 328-338.
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