Advance Directives as Support of Autonomy for Persons with Dementia? A Pilot Study among Persons with Dementia and Their Informal Caregivers

Journal article


Publication Details

Author(s): Schmidhuber M, Häupler S, Marinova-Schmidt V, Frewer A, Kolominsky-Rabas P
Journal: Dementia and Geriatric Cognitive Disorders Extra
Publication year: 2017
Volume: 7
Journal issue: 3
Pages range: 328-338
ISSN: 1664-5464


Abstract

Background: Advance directives could be an important instrument to support a person's will once he/she is not able to consent anymore - if composed competently. A survey was conducted to identify the level of knowledge concerning possibilities and limits of advance directives.
Methods: The study was conducted as part of the Bavarian Dementia Survey (BayDem). Data were collected from January 2014 to December 2015 by structured face-to-face interviews. Study participants were persons with dementia and their informal caregivers (n = 74).
Results: In total, 66% reported having written an advance directive. Concerning the participants' knowledge about possibilities and limitations of advance directives, a lack of knowledge was noted about the possibility to revoke an advance directive. Furthermore, 70% of informal caregivers and 56% of persons with dementia were not aware of the possibility to include dementia-specific terms in the advance directive.
Conclusion: It is necessary to optimize structures for public information and education concerning the topic of advance directives for persons with dementia.


FAU Authors / FAU Editors

Frewer, Andreas Prof. Dr.
Professur für Ethik in der Medizin
Schaller, Sandra
Medizinische Fakultät
Kolominsky-Rabas, Peter Prof. Dr. med.
Medizinische Fakultät
Schmidhuber, Martina PD Dr.
Professur für Ethik in der Medizin


How to cite

APA:
Schmidhuber, M., Häupler, S., Marinova-Schmidt, V., Frewer, A., & Kolominsky-Rabas, P. (2017). Advance Directives as Support of Autonomy for Persons with Dementia? A Pilot Study among Persons with Dementia and Their Informal Caregivers. Dementia and Geriatric Cognitive Disorders Extra, 7(3), 328-338. https://dx.doi.org/10.1159/000479426

MLA:
Schmidhuber, Martina, et al. "Advance Directives as Support of Autonomy for Persons with Dementia? A Pilot Study among Persons with Dementia and Their Informal Caregivers." Dementia and Geriatric Cognitive Disorders Extra 7.3 (2017): 328-338.

BibTeX: 

Last updated on 2019-22-07 at 07:29