Palliative Care Patients' Quality of Dying and Circumstances of Death-Comparison of Informal Caregivers' and Health-Care Professionals' Estimates

Beitrag in einer Fachzeitschrift


Details zur Publikation

Autorinnen und Autoren: Stiel S, Heckel M, Wendt KN, Weber M, Ostgathe C
Zeitschrift: American Journal of Hospice & Palliative Medicine
Jahr der Veröffentlichung: 2018
ISSN: 1049-9091


Abstract

BACKGROUND: Patient-reported outcomes are usually considered to be the gold standard assessment. However, for the assessment of quality of dying and death, ratings of informal caregivers (ICGs) or health-care professionals (HCPs) must be considered for ethical and methodological reasons. This article aims to present results of ICGs' and HCPs' estimates of the questionnaire, quality of dying and death (QoDD) on patients who died in PCUs and to compare the level of agreement of both ratings/raters.
METHODS: The parent validation study to this analysis assessed the ICG and HCP versions of the QoDD. Descriptive statistics are presented for each item in both versions. T tests for the estimation of differences between ICG and HCP were performed. Case-related absolute differences between estimates were analyzed regarding the extent of agreement and deviation.
RESULTS: Two hundred fifteen matched ICG and HCP ratings were analyzed. The ratings in all 6 QoDD dimensions were high; single items scored low. Mean absolute difference between both ratings was 0.33 (standard deviation [SD]: 3.08; median 0.05) on a 0 to 10 numerical rating scale and ranges between -8.24 (higher rating of ICGs compared to HCPs) and 9.33 (higher rating of HCPs compared to ICGs).
CONCLUSIONS: The findings appear to show a high satisfaction with quality of dying and death as rated by ICGs and HCPs, but we suspect this might be indicative of a methodological challenge, that is, a ceiling effect in both assessments. Single low scoring items may provide important clues for improvement in end-of-life care. Although descriptive data show comparable mean values and standard deviations, the actual congruence of ratings is low. In summary, replacing one rating by another cannot be recommended.


FAU-Autorinnen und Autoren / FAU-Herausgeberinnen und Herausgeber

Heckel, Maria Dr. phil.
Abteilung für Palliativmedizin
Ostgathe, Christoph Prof. Dr.
Abteilung für Palliativmedizin


Einrichtungen weiterer Autorinnen und Autoren

Johannes Gutenberg-Universität Mainz
Medizinische Hochschule Hannover (MHH) / Hannover Medical School


Zitierweisen

APA:
Stiel, S., Heckel, M., Wendt, K.N., Weber, M., & Ostgathe, C. (2018). Palliative Care Patients' Quality of Dying and Circumstances of Death-Comparison of Informal Caregivers' and Health-Care Professionals' Estimates. American Journal of Hospice & Palliative Medicine. https://dx.doi.org/10.1177/1049909118756616

MLA:
Stiel, Stephanie, et al. "Palliative Care Patients' Quality of Dying and Circumstances of Death-Comparison of Informal Caregivers' and Health-Care Professionals' Estimates." American Journal of Hospice & Palliative Medicine (2018).

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Zuletzt aktualisiert 2018-20-11 um 11:38