Registries in Clinical Epidemiology: the European Surveillance System on Contact Allergies (ESSCA)
Uter W, Schnuch A, Wilkinson M, Dugonik A, Dugonik B, Ganslandt T (2016)
Publication Type: Journal article
Publication year: 2016
Journal
Book Volume: 55
Pages Range: 193-9
Journal Issue: 2
DOI: 10.3414/ME15-01-0099
Abstract
Disease registries rely on consistent electronic data capturing (EDC) pertinent to their objectives; either by using existing electronic data as far as available, or by implementing specific software solutions.To describe the current practice of an international disease registry (European Surveillance System on Contact Allergies, ESSCA, www.essca-dc.org) against different state of the art approaches for EDC.Since 2002, ESSCA is collecting data, currently from 53 departments in 12 countries. Departmental EDC software ranges from spreadsheets to comprehensive "patch test software" based on a relational database. In the Erlangen data centre, such diverse data is imported, converted to a common format, quality checked and pooled for scientific analyses.Feed-back to participating departments for quality control is provided by standardised reports. Varying author teams publish scientific analyses addressing the objective of contact allergy surveillance.Although ESSCA represents a historically grown, heterogeneous network and not one unified approach to EDC, some of its features have contributed to its viability in the last 12 years and may be useful to consider for similar investigator-initiated networks.
Authors with CRIS profile
Involved external institutions
Georg-August-Universität Göttingen
Germany (DE)
Leeds Teaching Hospitals NHS Trust
United Kingdom (GB)
Maribor University Medical Centre (Maribor UMC) / Univerzitetni klinični center Maribor
Slovenia (SI)
University of Maribor (UM) / Univerza v Mariboru
Slovenia (SI)
Germany (DE)
Leeds Teaching Hospitals NHS Trust
United Kingdom (GB)
Maribor University Medical Centre (Maribor UMC) / Univerzitetni klinični center Maribor
Slovenia (SI)
University of Maribor (UM) / Univerza v Mariboru
Slovenia (SI)
How to cite
APA:
Uter, W., Schnuch, A., Wilkinson, M., Dugonik, A., Dugonik, B., & Ganslandt, T. (2016). Registries in Clinical Epidemiology: the European Surveillance System on Contact Allergies (ESSCA). Methods of Information in Medicine, 55(2), 193-9. https://doi.org/10.3414/ME15-01-0099
MLA:
Uter, Wolfgang, et al. "Registries in Clinical Epidemiology: the European Surveillance System on Contact Allergies (ESSCA)." Methods of Information in Medicine 55.2 (2016): 193-9.
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