Management of sporadic desmoid-type fibromatosis: a European consensus approach based on patients' and professionals' expertise - a sarcoma patients EuroNet and European Organisation for Research and Treatment of Cancer/Soft Tissue and Bone Sarcoma Group
Kasper B, Baumgarten C, Bonvalot S, Haas R, Haller F, Hohenberger P, Moreau G, Van Der Graaf WTA, Gronchi A (2015)
Publication Type: Journal article
Publication year: 2015
Journal
Book Volume: 51
Pages Range: 127-36
Journal Issue: 2
DOI: 10.1016/j.ejca.2014.11.005
Abstract
Desmoid-type fibromatosis (DF) is a rare monoclonal, fibroblastic proliferation characterised by a variable and often unpredictable clinical course. It may affect nearly all parts of the body including extremities, trunk and abdomen. Considering the variable clinical presentations, anatomic locations and biological behaviours, an individualised treatment approach is required. No established or evidence-based approach for the treatment of this neoplasm is available as of today. Therefore, we propose a consensus treatment algorithm based on a round table meeting bringing together sarcoma experts from the European Organisation for Research and Treatment of Cancer (EORTC) Soft Tissue and Bone Sarcoma Group (STBSG) with patient advocates from Sarcoma Patients EuroNet (SPAEN). The aim of the meeting was to develop - for the first time ever - a consensus approach based on professionals' AND patients' expertise. As a fundamental prerequisite, all patients should be discussed in a multidisciplinary setting in centres or professional networks with a specific expertise in the disease.
Involved external institutions
Ruprecht-Karls-Universität Heidelberg
Germany (DE)
Sarcoma Patients EuroNet e.V./Assoc. (SPAEN)
Germany (DE)
Institut Gustave-Roussy
France (FR)
Antoni van Leeuwenhoek
Netherlands (NL)
SOS Desmoïde
France (FR)
Radboud University Nijmegen Medical Centre / Radboudumc of voluit Radboud Universitair Medisch Centrum (UMC)
Netherlands (NL)
Fondazione IRCCS: Istituto Nazionale dei Tumori
Italy (IT)
Germany (DE)
Sarcoma Patients EuroNet e.V./Assoc. (SPAEN)
Germany (DE)
Institut Gustave-Roussy
France (FR)
Antoni van Leeuwenhoek
Netherlands (NL)
SOS Desmoïde
France (FR)
Radboud University Nijmegen Medical Centre / Radboudumc of voluit Radboud Universitair Medisch Centrum (UMC)
Netherlands (NL)
Fondazione IRCCS: Istituto Nazionale dei Tumori
Italy (IT)
How to cite
APA:
Kasper, B., Baumgarten, C., Bonvalot, S., Haas, R., Haller, F., Hohenberger, P.,... Gronchi, A. (2015). Management of sporadic desmoid-type fibromatosis: a European consensus approach based on patients' and professionals' expertise - a sarcoma patients EuroNet and European Organisation for Research and Treatment of Cancer/Soft Tissue and Bone Sarcoma Group. European Journal of Cancer, 51(2), 127-36. https://dx.doi.org/10.1016/j.ejca.2014.11.005
MLA:
Kasper, B., et al. "Management of sporadic desmoid-type fibromatosis: a European consensus approach based on patients' and professionals' expertise - a sarcoma patients EuroNet and European Organisation for Research and Treatment of Cancer/Soft Tissue and Bone Sarcoma Group." European Journal of Cancer 51.2 (2015): 127-36.
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